Frankie is 18 months old today!! As of Friday he is 18.0 pounds. Our little man is growing up and getting big!! He is even starting to wear more 12 month clothes! I was so excited the other day when I put a 6-9 month t-shirt on him and it was tight :) Just to give an idea of his size now, if he were 6 months old he would be in the 50th percentile for weight, if he were 9 months old he would be in the 9th percentile! We haven't had exact measurements done in well over a month, the most accurate calculator online I have found puts our little man in the 0 percentile.
Frankie now has 3 teeth ( 1 top - 2 bottom) and 3 more that will hopefully be through soon!
To date Frankie has had 4 surgeries, 2 MRI's, 3 EGD's and many other tests.
His first surgery was a Nissen Fundoplication, G-Tube and testicle lowered - in February. In May he had his tethered spinal cord released. In June he had ear tubes placed. And just a few weeks ago he had orthopedic surgery to remove his extra little toe. Through all this he has still kept his smile and humor, what a trooper!!
Good news! The only surgery that is left would be having his ASD closed in a few years. We will be going back to his Cardiologist soon and hopefully we will get good news, news that it closed on its own! If not we will keep waiting and hoping!
Also on October 9th Frankie goes into his GI Dr. and will hopefully be getting his G-Tube out ! We only use it for medication and venting at this time and the venting is not nearly as much as before! We won't miss it!!
Poopie Wars! The poopie wars have returned. We had about 1 and a half good weeks but now we are struggling again :( Not fun!!!!!!
ALL ABOUT FRANKIE!
Favorite Foods : Mac and Cheese and McDonald's Cheeseburgers with extra ketchup - I should say tiny pieces of Cheeseburger drenched in ketchup
Favorite Dessert : Woolleys Chocolate Frozen Custard, Followed by Snow Cones and Snack cakes, Also a big one would be Gerber Yogurt Melts!
Favorite Song : Twinkle Twinkle Little Star - Sung by big sister Mikaela Breanna
Favorite Place: Incredible Pizza - Carousel , He also loves the outdoors
Favorite Toy : Wish he had one!!
Best Friend : Big Sister Mikaela Breanna!
Favorite Game : I drop it and you pick it up!
Favorite Activity: Spinning!! Loves to spin in the computer chair!
Favorite Therapy : Aquatic!
Favorite TV Show: Intro to JoJo's Cirus and Dora the Explorer
Most annoying habit: Grinding his teeth!!
Frankie goes to Grapevine twice a week for Physical Therapy. Once his foot heals completely we will switch back to once a week PT and once a week Aquatic Therapy. In physical therapy they have been working on getting him in the crawling position-he screams the entire time, its very sad!! They have also been working on getting him into the standing position and a few other things. I can't see him crawling or standing on his own anytime soon but the practice will be good for him!
We also have a Speech Therapist come out to our house twice a week. He has made alot of progress in eating!! He eats almost 3 full jars of Stage two baby food a day! This is a big change from just a few bites a day!! His eating routine is less than desirable though! Here is how it goes... He will take maybe a bite or two to start off.. Then holds his mouth shut TIGHT shaking his head no. He does this until I give him something to hold in his hand, right when he gets something he will open and take a bite. THEN he drops its on the ground and we start all over.. You should see the area around his highchair when hes done, its surrounded with various objects! It gets him eating but its annoying!! :) We still haven't made much progress with getting him to drink out of a cup or straw yet. IN HIS TIME :)
His Occupational Therapist has been out sick for a while, but we are hoping she will start coming back out this week. He is supposed to be seeing her twice a week as well. He definitely needs her!!
Throughout everything, he has not forgotten how to PULL MIKAELA'S HAIR!