Monday, December 29, 2008

Bella came to visit us today!!

We had a blast today, thanks for coming to play Bella! Bella motivated me to start teaching Frankie sign language, after I saw her sign Mommy! UNBELIEVABLE!!



Aren't they cute together?!!



Bella checking Frankie out




Frankie riding his horse while Bella tries out his "Wheelchair"



Look at the big girl, shes so strong!

Thursday, December 18, 2008

Cardiologist last week


I guess I forgot to do an update!! The appointment was horrible! Frankie has devloped a hatred for Dr's offices, it started the day before when he went to the pediatrician and then to the lab for bloodwork. He screamed the entire time at the cardiologist, he shook and he literally choked me.


Anyways, through the fits they were able to get some info off the Echo.. He still has an ASD, its about 4mm. The Dr. said that because it is so small he may never have to have surgery to fix it. GOOD NEWS!!!


Update on the kids --- Mikaela has been sick since last Tuesday. Yes, almost a week and a half!! She has been miserable, high fever , lots of coughing and just plain feeling like CRAP! Frankie has been sick since Sunday, today he seemed a little worse. I took them both to the Dr. this morning. Mikaela seems ok - meaning lungs , ears and throat. Frankie has an ear infection :( I was bragging just the other day about how long it has been since he had an infection!!!!


Frankie will be going in on Monday night for a sleep study (wish us luck!) We then go Tuesday morning to the ENT. He snores horribly!! They will be testing for apnea. Hopefully its just snoring, but you never know!


Wednesday, December 17, 2008

Mikaela loves Christmas Time!!

Mikaela is soooo into Christmas this year!! So far we have gone to Prairie Lights, the drive through light show. They also have rides and junk food! We have also gone to the Special Needs Christmas party at Incredible Pizza. Below are some pictures of her enjoying herself!

Still to come - Holiday in the Park at Six Flags (If we are feeling better, we have all been sick! It started with Mikaela and Corey last Tuesday. Then Frankie and I on Sunday. Now Mikaela again!!)

Everytime we go out at night time we have to take her to see all the pretty houses with lights. When we get back to our neighborhood she immediately advises us to open up the van door on her side so she can do her ride through the hood and see all the lights.. Too cute!!


Pictures taken at Prairie Lights in Grand Prairie




Mikaela and Santa at Incredible Pizza




Merry Christmas everyone!! 8 more days! I hope you are enjoying the season as much as we are!
Only 8 more days to fight the presents out of Mikaelas hands after she attempts to open them! Who knows, maybe next year I will get to fight Frankie too :)



Sunday, December 14, 2008

The Littlest Heroes Project

We had our photo shoot 8 days ago, it was wonderful! Megan Hamilton is an awesome photographer, so sweet and caring! Thank you so much for coming out to our home Megan!
She posted a few pictures on her blog -- a sneak peek. They look great! Here is her blogspot link if you want to see them all, I will post a few here. http://meganhamiltonphotography.blogspot.com/


Big thanks to the Megan Hamilton and the Littlest Heroes Project http://littlestheroesproject.org/Littlest_Heroes_Project/Home.html, we gave up on portrait studios because of the stress it put on us and the kids. We know who is doing our pictures next time :)

DFW Folks -- Please check Megan out at http://meganhamiltonphotography.com/ you will love her and her work!

Thanks also to Jessica Pruitt for letting us know about the Littlest Heroes Project!!





Monday, December 8, 2008

Cardiologist appointment

We have been rescheduled for Friday at 11am! Thank God! I thought we were going to have to wait another 2 months!


Well I received a call this morning from the Cardiologists office, the Dr. is out sick. Are they allowed to be sick?! Anyways, they will be rescheduling us. I was so anxious to hear what they had to say today! :(

Sunday, December 7, 2008

Cardiologist follow up is tomorrow!

Frankie has his yearly follow up with his cardiologist tomorrow at 1130. Pray for good news!



Tuesday, December 2, 2008

Just wanted to share!




Just wanted to share with yall what Frankie's PT said today. She asked if we had locks on the cabinets yet. Why, you say? Frankie should be crawling soon! He is doing great and almost has it!! So exciting!!






Frankie and his little cuz Trey playing on Thanksgiving


Getting ready to brush his teeth! He loves to brush his teeth! Ok, he loves the little game we made out of it!!

For the DFW folks

this sounds awesome! we will be going to the Euless one!! Frankie loves Incredible Pizza!!

http://www.ipceuless.com/

The first ever Special Needs Christmas party will be held on Saturday, December 13, 2008 from 9:00 a.m. to 1:00 pm at both America’s Incredible Pizza Company locations at 1201 W. Airport Freeway in Euless and 1330 N. Town East Blvd. in Mesquite. Incredible Pizza will be open only to special needs children and their families from 9:00 a.m. to 11:00 am on December 13th. A reservation is required for attendance. (For reservations call: Cynthia Ward at 817-538-3209). Lunch will be served from 12:00 noon to 1:00 pm. At 12:00 noon Santa (Santa USA) will land in two helicopters with his elves. We are asking the public to participate by donating a new unwrapped toy for a special needs child. Toys will be accepted at both Incredible Pizza locations from October 30th to December 12th as gifts for the special needs children. These gifts will be distributed to special needs children at the event on December 13th. A dove tree will be located in each lobby with children’s ages for Christmas gifts. If you know a special needs child that would like to attend the event please call for a reservation. Reservations are free of charge for the special needs child and their family. They are available on a first call, first served basis with 300 seats available.