Saturday, January 31, 2009

Rest in Peace Princess Bella


Rest in peace Bella Reign, you will be in our hearts forever!!


I wanted to write and let you all know that yesterday was the saddest yet most beautiful day ever. Bella was laid to rest yesterday morning, many thanks to all the RTS families , Special Friends Foundation and Wesley T Helmbrecht Foundation for making the day possible. Her final resting place is next to a young tree, one that will grow with her. The cemetary that she is in is very beautiful.

I wanted to ask again that you all continue to pray for Monica and her family.

Please also pray for the Priest who led Bella's Mass yesterday. Pray that he finds the lord in his life, pray for his heart! I have never met such a rude, cold and heartless person in my life.. And for him to be a priest? Pray that Monica can get past his actions yesterday and be able to see how beautiful and perfect everything was.

Our kids are truly wonderful and all knowing! Everytime Frankie was in Bella's presence he just put his head on my shoulder and was so calm and peaceful. He also saw her a few times, everytime he saw her he got the biggest smile on his face - bigger than I have ever seen. He was overwhelmed with joy, he knows that she is comfortable now and in an awesome place.


here is a link to her obituary

http://www.cleburnetimesreview.com/archivesearch/local_story_028113518.html

Thanks again,

Gena

Thursday, January 29, 2009

Thank You Thank You Thank You!!

Many thanks to the Special Friends Foundation and the Wesley T Helmbrecht RTS Foundation for covering THE ENTIRE COST OF THE FUNERAL AND BURIAL!

We are all blown away by their generosity!

An account has still been set up to help with other expenses, mainly travel related.

If you are wanting to make a donation the account is at Bank of America and I have the Acct Number. It is under the name of Monica Cordova - Beneficiary 488019761509 (I think that is how its listed) Anything received beyond their needs is going to be donated to RTS Research. If you want to make a donation directly or send a card , Monicas address again is

1302 Kilpatrick #217 Cleburne, TX 76031

Thank you all again for your prayers and assistance. Please continue to pray for Monica and Family.

Frankie and I are leaving in a few hours so we can be there tomorrow. We are flying (thank you Jayne for the Buddy pass!) Driving is just not an option with Frankie, at least not by myself!

Wednesday, January 28, 2009

Celebration of Life



Bellas Funeral is going to be Friday in Midland, TX. Viewing is going to be today.

Monica has asked to please not send any flowers or gifts. She asks that if you were wanting to do this that you send a monetary donation instead. She is needing assistance in funeral costs.Anything will help. Whatever is left after funeral costs she will be donating to RTS Research and Cook Childrens Hospital - Cooks took such wonderful care of her for 2 years!

An account will be opened today for donations to be deposited into. Please help us in remembering Bella! Bella's funeral will be a celebration of her life with a princess theme, not the traditional black. A beautiful day for such a beautiful angel!

I will update with Donation information once the account is set up.. Thank you all! Please keep Monica and family in your prayers

Monday, January 26, 2009

In the Arms of the Angels





In memory of Bella Reign Guerra February 16, 2007 - January 25, 2009

Bella went on to be with the Lord last night.

Please keep Monica, Marcel, Destiny, Destin and Family in your prayers.

Bella was truly an angel sent from above, I feel very blessed to have known her.

Bella was 23 months old.

Saturday, January 24, 2009

Basketball Practice Disaster!!!


Mikaela had basketball practice last night.. It started at 6pm, at 615 we were on the way to the ER! Right when we walked in she got smacked in the face with a ball, I should have known it was going to be one of those nights!! At 615 she was chasing after her ball, the team on the other side of the court started running laps around the gym (8 year olds, GRRR!!) Mikaela was hit head on and flew back busting the back of her head. We spent a lovely 6 hours in the ER. Mikaela had a CT Scan which came back good. She has a swollen nose, 2 small black eyes, a bump on the back of her head and a concussion.

Since we were already there we registered Frankie who hasn't been doing too good, he has an upper respiratory infection.

Monday morning I will be making phone calls! They practice at an elementary school GYM, its not huge. To have kids running around when there are 3 and 4 year olds practicing is ridiculous.. Because of the size of the Gym, these kids were actually running on the court. GENA IS ANGRY!!! We were so lucky that it wasn't any worse! The girl who ran into her (big girl!) hurt her shoulder , she too was crying! I'm not sure if she will be continuing this season, it was very scary!!! I don't know who cried more, Mikaela or I!

Sneak Peek from Bella's photoshoot

My nephews girlfriend came out and did lots of pictures of Bella today, here is a sneak peek. These are pictures that I took, hers of course will be much better!!



Thursday, January 22, 2009

Frankies appointment

Well I guess I misunderstood or was told incorrectly. We showed up at 1030 and ended up with an Upper GI.. The scope, etc will be next Wednesday!

The Upper GI showed a little herniation of his Fundo, not much else..

Thanks for thinking of us :)

Our visit with Bella

We were able to see Bella today while we were at the hospital, they even let Frankie in! Here are a few pictures..
Please continue to pray for Bella, Monica and Family. There is going to be a meeting at 1230 on Monday afternoon to discuss whats next. There aren't very many options, turning off the Vent and letting her pass or taking her home in her present "state".
Monica wanted a picture of the two of them together, so she tossed Frankie in the crib when the nurse turned her back!
Check out the princess!! Monica braided her hair, she looks like Pippi Longstocking!

I was asked by a few people for an address to send cards and notes too..

Their address is 1302 Kilpatrick #217 Cleburne, TX 76031

Please be thinking of Frankie today!

Frankie is going in for another EGD, biopsies and possibly pylorus dialation. We have to be there at 1030 this morning..

He has been burping like a mad man and has even spit up a few times, something that he isnt supposed to be able to do.. He has been up at night crying and crying and crying.. Hopefully they figure out whats up and hopefully whatever it is doesnt require a repeat surgery!

Please say a prayer for him that anesthesia doesnt get him this time like it did 6 days ago!

Wednesday, January 21, 2009

Another Bella update

Bella is still "asleep". They attempted to ween her off the drugs that are keeping her out, this started on Monday. She finally woke up today and was not breathing at all. Of course she fought the Vent, shes a stubborn little princess! They had to put her back under unfortunately. Thats all that I have for now, nothing much has changed :(

Please continue to pray for sweet Bella!
This first picture is from Saturday when i visited her. She was awake and at about 50 percent Ventilator.

This picture was taken yesterday, 100 percent Ventilator and in drug induced sleep.

Sunday, January 18, 2009

Bella Update



I was waiting till today to give an update because I was hoping for good news from Monica this morning.

I was able to go visit Bella yesterday afternoon. She was on the Vent, I think maybe around 50 percent O2.. I was there when the Dr's visited. RSV and Flu both came out negative. They talked some about her chest Xrays, evidently she has Pneumonia again. The nurse had said that her xray was very hazy, it looked horrible. He did however say that it looked a little better than it did during the night. Bella was "drugged up" quite a bit because she does not like the vent. She was still awake and wanted to play though. She kept begging to be held but we arent able to hold her. Monica got to hear Bella for the first time yesterday. She was making alot of noise, the typical baby noise.. It was adorable! This really made Monica feel alot better, she has always wanted to be able to hear her "voice" definitely not in this way but it did bring a little sunshine to her day.

Monica left late last night to go home and get her other kids ready for the week of school ahead of them. When she returned Bella was on the Vent at 100 percent and they had paralyzed her. At this point they are going to keep her paralyzed for a few days to try and give her body a chance to heal / fight. She seems to be getting worse instead of better. It also doesn't help that she is fighting the vent with every ounce of energy that she has!

Things aren't looking good at all. Please continue to pray for Bella, she is the sweetest most precious baby girl in the world! Please also pray for Monica, she has some very tough decisions ahead of her.

Saturday, January 17, 2009

Please pray for Bella!


I wanted to give an update on Bella, she was admitted to the hospital yesterday (Friday). They were thinking she has RSV, I'm not sure if that was confirmed yet. She had a tight chest, wheezing and a 102 fever. They attempted an IV on her and she stopped breathing, she was transferred to the ICU. The last update that I received was at about 1 AM and she had just been put on a Vent.

Please be praying for Bella, Monica and Family. She had just recovered from Pneumonia, and had been out of the hospital for about a week. I had last spoken to Monica on Thursday and she said she was doing great. There was a big change in just 24 hours. Bella is a very strong girl, a fighter like the rest of our RTS sweeties! Please pray that she pulls through. Bella will be 2 on February 16th :)

Gena


Friday, January 16, 2009

We are home!

It was a very long day!! We left the house at 530 AM and didn't get back home until about 245 PM. The surgery itself went great, it took about 5 minutes to get the Adenoids out. Recovery wasn't as great. He was in recovery for close to 2 hours before I was able to see him, a long 2 hours! He had alot of trouble breathing and was on oxygen for quite a while, thankfully it didn't last too long - they were talking about keeping him overnight!

We are home and he is sleeping.. He doesn't seem to be in too much pain but he is exhausted. He also keeps choking and gagging, I'm guessing because of the swelling.

Thats it for now!

Thursday, January 15, 2009

Surgery

Surgery is at 7am, we have to be there at 6am -- YES 6AM!!

Will update when we get home

Saturday, January 10, 2009

Shes a Superstar!!

Getting ready for the 1st game!

Isn't she just too cute?!?!



Warming up






Good Game!! Maybe next time there will be less running in circles and running off the court to see Mommy, Daddy and Bubba










Wednesday, January 7, 2009

Snorrrrringggg!

Frankie snores horribly, he also has apnea episodes throughout the night. I took him to the ENT on the 23rd of December for a consult. I was told his tonsils are tiny , they did an Xray of his Adenoids and they are HUGE. After much consideration we decided to have the Adenoids removed. He will be having surgery on January 16th - next Friday. If all goes well he will be home that afternoon! Please say a prayer that everything goes ok! Its a pretty simple surgery, as usual, anesthesia is the biggest concern.


Heres a cute picture that I took a few weeks ago, Frankie got into the crayons!




Saturday, January 3, 2009

Check us out!

Well they did a few updates today and we are all over the site :)

Frankie is now on the homepage!

http://www.littlestheroesproject.org/Littlest_Heroes_Project/Home.html


He is also on the Heroes page
http://www.littlestheroesproject.org/Littlest_Heroes_Project/Our_Heroes.html


And we are all on the Experience page!!

http://www.littlestheroesproject.org/Littlest_Heroes_Project/The_Experience/The_Experience.html




Here is a picture of Frankie after his haircut today, hes so FINE!! And to all you out there freezing today, it was 80 here today - see his summer attire?




Check him out!!

Frankie made it onto the Littlest Heroes Website!

Check him out!!!!

http://www.littlestheroesproject.org/Littlest_Heroes_Project/Our_Heroes.html