Thursday, October 30, 2008
Wednesday, October 22, 2008
Tuesday, October 21, 2008
Sister trying to clean him up
Monday, October 20, 2008
Friday, October 17, 2008
Frankie had his biopsy yesterday morning. We should have the results either today or tomorrow morning. We are hoping its negative!
He also saw his GI Dr. yesterday. He has lost more weight, he is back at 17.8 pounds (with a diaper on) he was at 18.1 without a diaper. We are going to start night time pump feedings to get him extra calories. This will also get us extra sleep, as long as his tummy tolerates it! Hopefully we figure out the magic number and won't have any wretching episodes...
After the GI appointment we went to the lab for bloodwork, they are checking for a milk allergy. My poor little guy was poked 3 times, he was hysterical the entire time! They can never get blood from him, they even have a hard time with IV's - he always comes back with multiple pokes after surgery. They don't even do it until hes asleep so we know its just not his wiggling! Anyways, hopefully we know the results from the blood work soon.
When we finally got home from our LONG MORNING Frankie took his afternoon nap - 4 hours!!!! It was crazy yet wonderful!! He is napping now as we speak, going on 2 hours :)
Hanging out with Bubba on his Chair. They love each other so much!
Mikaela loves to fold towels, great helper always!
My Swinging Babies :)
Sunday, October 12, 2008
He did it! Frankie burped today!!! So exciting!!!!!!!!! I haven't heard my little man burp since he had his Fundoplication in February.. It was beautiful!! Burpppppppp! :) Of course I made a big deal about it - even got him excited!
Getting ready to carve her pumpkin! She already "colored" it!
Goodmorning!! Hanging out on the couch watching some cartoons :)
Getting ready to spin!
Wednesday, October 8, 2008
Constipation was the topic of discussion yesterday. His Dr. wants him tested for Hirschsprung's disease. We are going tomorrow at 2 to see his pediatric surgeon at which point they are probably going to set a day and time for a biopsy. Chances are that its just the normal RTS constipation, but because his main issue is just getting it out - its not the normal type of hard stool constipation he will be tested to be cautious!
One part of me is hoping that its not Hirschsprung's
Please say a prayer for Frankie!
Sunday, October 5, 2008
A little more than a week ago Frankie started cutting back on his baby food (Watching his figure?) . Day by day things have gotten worse.. At this point he is eating nothing and drinking almost nothing! During the day he is refusing everything, at night he is doing fair. I GUESS WE ARENT GETTING THE G-TUBE OUT :( He has lost weight since his last weigh in.. He's not doing so good!
Well I typed that up a few days ago and never got a chance to finish!!
I ended up taking him to the ER on Tuesday. It seems his whole tummy was full of gas, not sure what was going on! They gave us some super duper anti-gas medicine for him and also did an enema while he was there (the other end was clogged!) Anyways, he is doing better now! Eating alot better, not as well as before but better thankfully!
Frankie now has 5 teeth!! From 3 to 5 in a few days! Woohoo!!
He also started holding more than one toy and banging them together!
AND he loves to play peek a boo!! I will add a video later, its so cute!!!!!
We got a call about Frankies new stroller (pediatric wheelchair) , it has been approved and should be delivered in the next 2 weeks! So exciting! We are going to have to put insurance on this thing, I can't believe how much they cost!!!!!
Here is a picture of the one he is getting - his has orange trim..
Isn't she Beautiful!!
Mikaela is now sick , a bad cold I guess. She is losing her voice , coughing alot and feverish.. Hopefully Frankie won't get sick because it always lasts much longer with him and as with everything else he stops eating and loses weight!
She is loving her new school! She has alot of friends and loves her two teachers! She is having her Stone Soup Dinner and program this Thursday - we can't wait!! This past week she got to see a fireman and firetruck, she was in heaven! We have pictures of her trying on the firemans helmet, I will try to scan them later so I can share!
Hanging out at McDonald's
Mikaela and Frankie play together alot now - FINALLY! Its too cute!! I will try to get some pictures and videos taken soon. Its so sweet to watch!