Friday, February 27, 2009

Rare Disease Day February 28, 2009

I just wanted to share some news with yall! I just received an email from Governor Rick Perry's office. Texas is now on board for Rare Disease Day, he just signed today!!

This goes to show that when people work together change does happen!

Thank you to everyone who emailed , wrote or called on behalf of those who have a Rare Disease / Disorder.

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