What?!

Frankie is 3!!!

Happy Birthday to my Itty Bitty BIG BOY!! It's hard to believe that 3 years have passed!

Frankie Signing "Eat"

Frankie has been doing wonderfully!! He had surgery 12 days ago and got through it like a champ, he's such a strong boy! Frankie is going to be starting school on the 22nd, I never thought I would be able to send him at such a young age, however when we went up to the school and met all the wonderful people up there my mind changed! They fell in love with him instantly and he fell in love with them!! It was heartwarming to hear all the kind remarks from them, during his IEP meeting they all had their papers written up and every single person that he had met in his evaluation commented on how happy he was, the fact that he was always smiling! My boy is changing people, hes so sweet, so innocent and SO HAPPY!!



SO... When Frankie was diagnosed with RTS and I read all the information about it I cried. The hardest thing was reading that I had a 50 percent chance of never hearing my baby boys voice. Every mom wants to hear their child call them mommy or Momma right? Frankie has been making alot of progress in this area! He doesnt really "talk", but I have heard his voice! Frankie has a few words and also a few signs. If he doesn't add any new words for the rest of his life, I'M HAPPY!! Frankie says up, backpack , mama (not to me yet but he says it!!) , he calls me baba, he says bite, bubbles, bye bye and a few more random things! Frankie signs more, finished and eat! So much progress in the last 3 years, more than I could have hoped for!!



Now... I had a dream , my dream / wish was for Frankie to walk by his 3rd birthday. He crawled right before his 2nd birthday so it could happen right?? Well, check out the video below!

My dream/wish was never too specific , just to have Frankie walking. Frankie is walking, he is walking assisted - but he is walking!! Definitely a dream come true!!! I can't wait to see whats in store for us next!

Now for a little update on Frankie's growth. Frankie is now 24 pounds 3.2 oz and 33.1 inches long! Growing, slowly but surely!!

Frankies early birthday present!

We found the PERFECT birthday present for Frankie!! It amazed me to see how fast he learned how to ride it when we put him on it at the store! It was so perfect that I had to give it to him 2 weeks early, its ok though - Frankie doesnt mind!!

JUST DO IT!!!!!

Please!!! Just click and $1 will be donated to NORD (National Organization for Rare Diseases) RTS which is what my son Frankie has is considered a Rare Disease. Please help make a difference by clicking, it wont cost anything but a second of your time!!!!!!! SERIOUSLY!!!!!!!!!!!!!!!

Http://seed.sproutbuilder.com/JAB2DGWPIBkhhoZb?v=1266940107323

In Memory of a true RTS ANGEL AND FIGHTER

In loving memory of Bella Reign, born to this world February 16th, 2007, taken to heaven too soon on January 25th, 2009. Bella, we miss your sweet precious face so much! You were the most beautiful and strongest baby girl I have ever met. I know you are having a blast in Heaven, free from everything that ailed you when you were here with us.

Bella Reign - In our hearts FOREVER!! Gone, but NEVER forgotten.

Please continue to pray for Monica and family during this difficult time and times to come.

RTS FAMILY IN NEED

Below is a link that belongs to the blog of someone in our RTS family. They had a very bad flood in their house over the holidays and are now trying to put everything back together. Their son Jesus' room was damaged the worse. He is a 9 month old baby boy with RTS, hes another of Frankie's twins! They are in desperate need of a crib for Jesus as well as bedding. He also lost most of his toys. They also have a 3 year old daughter who lost the majority of her toys and books. If you can, please help this sweet family! New or used, it doesn't matter - they need your help!

http://jesusandesmeralda.blogspot.com

CHRISTmas Time! Lots of Pictures.......

We had a great CHRISTmas, an entire month of listening to the Chipmunks CHRISTmas CD (kinda glad I can put it away now!) We had a pretty scary Christmas Eve, it snowed all day long - then turned to ice! We didn't know it was that bad when we left the house. We ended up getting stuck on a hill (with alot of other people) while on the way to my Mom's. Corey and my Brother were out in the cold for what seemed like an eternity helping the car in front of us get turned around, then our van, then the car behind us.. NOT FUN!!

We had a white CHRISTmas though!! The streets were much better by the next afternoon thankfully. We actually still have ice in our driveway -- again NOT FUN!! Still a little snow left too.. AND its supposed to snow again tonight, WOOHOO!!! Staying home tomorrow!!!

The kids got alot of cool stuff for CHRISTmas. Frankie opened some of his presents for the first time ever!! A MIRACLE!!!!!

Below are some pictures from CHRISTmas day

Doing a little spinning before starting the day..

Santa came!


Zhu- Zhus!

Santa ate both cookies and drank his Milk

Corey and Mikaela

Ready to open her presents

He is opening his presents!!!

He likes what he sees

Tea Set

Playing with the wrapping paper

Pushing his new remote control car

Loves his mailbox!!

Surprise!! She got her new motor scooter!

POOPED!!

Cousins

Beautiful Girl!

Sitting on his new 4 wheeler, loving it!!